Questions come to mind:
- What do the little twitches and random numbness in my cheek mean?
- What about the bouts of fatigue?
- Is there really such thing as remission with Lyme?
- What if I get bit again?
- Will I ever be 100%?
- Keep my chin up and continue to pray.
- Count my many blessings.
- Keep my covenants and remain faithful.
Journal dated December 5, 2009:
It has been almost 1 1/2 years since my last entry. It has pained me to write, as I really do not want to actualize the words that I must write. As the days and years have gone on and I see the purple edged spine of my lonely journal, my insides groan and I resist. Why do I resist? I am a coward, I suppose. Perhaps by writing, I will reveal things I don't want to believe myself, however, time is of the essence, so to speak and I must write now, before the time may come that I won't be able to anymore. I am scared. For the 1st time in my life, I face the fact that the keys of mortality are jangling in front of me and I am simply not ready emotionally to face that. But, come what may, it is a fact of life, that God gives it, and at some point is taken from us. But thank the Lord for eternal life, and eternal families. How grateful I am for that. My health has taken so many twists and turns but continues to decline, as I see it. In 2005, I was vibrant, active, and healthy and walking 15 miles minimum a week, organizing conferences, writing a book and homeschooling successfully, I was primary president, I had life wrapped around my finger. Today, I am sedentary, my speech is slurred, my tongue is numb, my throat won't swallow, I can't remember things and I say things backward, use the wrong words for simple things, have labored breathing and am unable to participate in activities, exercise or organizations. I can't lead or take charge of most things. My gait is unsteady, I have no appetite, my eyes hurt and sting and I can't see when I get up. I am taking about 25 products to keep my brain healthier and being treated for late stage disseminated Lyme disease, Epstein Barr Virus, chronic fatigue syndrome, a bacterial infection in my lungs and now my symptoms are manifesting ALS. More than anything I want to be well again. I want to raise my family, be a wife to my husband and live. I will try to be positive and happy and keep a good perspective. It is scary. The things I read aren't good and the prognosis is awful. There is no cure.
I am turning the knob now............
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